Skip to main content

Thoughts about my ending





 How will I handle my death when the time comes? This is a question that occasionally slips into the dark recesses of my mind and makes me even more nutty than usual. It’s not that I have a feeling of impending doom, far from it. But, when you’ve been given an expiration date that’s almost certainly going to be sooner than later, things like that tend to bug you from time to time.

I have been present at the death of several people and each has had their own unique “style” in death. My father, for example, thought he could not go, that he was needed by the family and he fought with all that was in him up until the very end. He had been in the hospital for several days and had had several MI’s, each more devastating than the previous, and he was lingering in misery. For the most part, he was outwardly unaware of the world around him or the condition he was in, he was semi comatose most of the time. However, occasionally he would open his eyes and have the strangest look in them. A look that said it’s time to go but I can’t leave you all. And so it was after a particularly nasty heart attack following which he sat bolt upright (something he hadn’t been able to do in years), reached his hands and arms toward the heavens, and had the most peaceful look on his face. Then he slipped back into his darkness. He had seen his death and seemed to welcome it in the moment but then fought it off. It was heartbreaking. I stayed extremely close to him following this and the next time he opened his eyes he looked directly into mine. Suddenly I felt an overwhelming urge to give him permission to pass into his eternity. So, I did. I told him it was okay if he was tired and needed to take a rest, that we would take care of Mom and we would be alright. We would miss him terribly but realized he would be so much better off. He said not a word, he was incapable at that point, but a look of calm and inner peace filled his eyes in that moment. And within minutes he had passed peacefully into his long sleep. This situation has haunted me since. On one hand, I feel a deep sense of remorse that I told him to go when he wanted, that we would miss him but always love him. I did not want to let him go but knew it was time. On the other, I feel a deep relief. A relief that he is no longer hurting, no longer confused...simply that he is no longer suffering. A relief that I believe my giving him permission to pass in some way eased the transition for him. It is a decision I know in my heart was the correct one but with which I struggle to this very day.

My mother’s passing was much different. She knew she was close to death and she was scared. It wasn’t a fear of where she was going, she had long ago set things straight, but more of a sense of loss I think. She dreaded leaving us, her family had been her life and she dreaded the thought. In the end though, she seemed content as she slipped into unconsciousness and lingered in that state for a little over a day. I sat with her, held her hand, told her we loved her and would miss her. There was no outward sign she heard anything I said but I could feel the tensions ease in her body as I spoke to her. She eventually passed peacefully in the middle of the night, only my younger son and I were with her. She took one last long breath, let it out quietly and gently, and was gone.

My brother’s death was altogether different from either my father or mother. He had been “terminal” since before he was a teen. As the doctors told my parents his life expectancy was somewhere in his mid 20’s, he felt he had a bonus 50 years or so on this earth and was thankful. And he was at peace with his impending demise but dreaded being confined to a hospital, hooked to who knows how many machines and for how long during his final hurrah. He did not want to die on a ventilator, something which almost seemed a certainty. Thankfully this did not come to pass. In the end, as he was getting dressed for the day he suddenly simply fell back onto the bed and was gone. No suffering, no tubes, no ventilator...nothing. Just his own bedroom, beside his loving bride of over 40 years. I don’t think he could have imagined a better way to go.

In each of these instances I feel they had handled themselves extremely well, although quite differently. And I often wonder if I will be able to handle my impending passing with such grace and confidence. Will I peacefully pass into eternity or will I go kicking and screaming, leaving a scar on the soul of my family forever. In my current, semi-sane state I accept what is to come and do not dread it. But I do dread leaving my family and the pain it will cause them. As I slip further into the darkness of dementia, as my time draws nearer and nearer, will my calmness turn to fear and resistance. Will I make my passing much harder on my family than it has to be. Will I face my demise with grace or trepidation. These and so many more thoughts pass through my mind and give me pause. And the only way I will get any answers to these questions is in the end, when I actually go through the process. Much too late to change anything.

I’m sorry if this was a distressing post, a downer. But, when you know your life is in it’s waning moments, that you won’t be doing all the things you and your wife had always planned, that you won’t be spending your “Golden Years” in the arms of the love of your life...these things pass through your mind with much more frequency than you would like. And occasionally you must get them off your chest and allow them to see the light of day. If for no other reason than to retain what little sanity you are still blessed with.



Randy

Comments

  1. Randy; The jokey stuff I left on the other board but this is not really a jokey subject and I didn't want you to think I was belittling your queries. In fact if anything I humbly admire you and your ability to look at this. For all of my bullshit, I can barely look at the question anymore because of those friends who went quite fearfully...this left a heavy impression on me that never went away. We all die alone, no matter who is there and maybe this is macho bullshit upbringing, I don't know but I really do feel this is the one final way I shall be measured is how I face this situation and I don't mind telling you Randy, I still have zero fear of the death itself but since you can't control the dementia, I fear I will become the frightened child that can't understand whats happening, forcing loved ones to repeat the painfully obvious (and just plain painful) truth to you. Me I mean. No one can prepare us for that, not really, not mentally. Church and that tries to but I spend enough years under the yoke of religion to know that the bible tries to get you to buy into being humble, poor, etc while on earth because of some theoretical paradise awaiting at death, like a PG rated version of the Muslim thing. Point is though NOBODY knows what happens then, nobody, if they claim to they are bullshitting..

    So they have no real idea if you go to heaven, hell, or Cleveland for that matter when you go, so who are they to ask me to give up everything based on a promise they or nobody can fulfill.

    So I can't buy into the going to heaven bit as a soothing thing when the day of death comes...which at that point leaves even my brain-damaged guesses as to what comes next just as qualified as anyone elses.

    So w/o the crutch of religion, and assuming I am not to brain-fried by then I won't be aware anyways, the remaining way I have to look at it is pragmatically as I can. Its a part of life, I have done most everything I wanted, ended with the sweetest girl, had a blast, etc, so regret won't be a part of it. If there is pain, death will mean release from that and if not, well, thats one less problem at the final hour. I am not looking forward to it, not at all, not that crazy yet. I just don't fear it and all things being equal, I probably won't. That is about all the grace I can take with me....

    Randy, your question deserves far better replies than my crappy words, this one is pretty important since there are surprisingly few life-changing choices left in your hands anymore..

    ReplyDelete

Post a Comment

Popular posts from this blog

Dementia Cannabis Update

Update: 22 July
Project started, grow page and journal is here:

Operation: Constant Clarity


This is one of the most difficult posts I have had to write, mostly because I "had" to. Allow me to explain and I promise by the end you will not only understand the "difficulty" and the "had to" bit but also I hope you come away with a few new assumptions or conclusions, you pick and if all that passes you by, perhaps you will find illumination as this is some serious "dementia from the inside out" kinda shit.

The 18:1 Theory
Before I tell you what happened, please recall I have expressed a theory or hypothesis on the effects of a cannabis extract/concentrate that tests out to have a CBD:THC ratio of 18-1 on the demented mind. By demented I mean any brain with not just dementia but anything that alters so-called normal operation. I don't mean anything like it fixes everything, rather there are things that are fixed by this like PTSD and ADD that you …

Be Who You Actually Are

Many moons ago I was starting my day like many of us enjoying the gifts of dementia by spending most of it screwing up each and every thing I attempted to do, large or small and usually in ways both spectacular as well as costly.  On the verge of tears I spent about an hour medicating with my very best botanicals when I had the BFO (Blinding Flash of the Obvious, engineer-speak): I am still attempting to be something that I am not only NOT but barring acts of a supreme deity, never will be again. Its just that damned simple.

* What makes a persons personality unique is the precise set of influences, patterns of thinking, lifetime experiences or memories amongst many other things. These are all stored and/or controlled by the brain.

* The root cause of dementia is damage to select portions of the brain.

* For better or worse, the simple truth is that this will result in a different person. Not better or lesser, simply different, in the same way that any two coworkers might be very dif…

Holy Crap Batman! A hero with dementia!

Braven 2018
Hey kids, I ran across something you just HAVE to watch. I mean you as in readers of these words. Looking for entertainment last night I was scrounging some of the dodgier parts of the Internet for something not involving a cape or "found footage" to watch. Long story short I ran across something from this year (2018) called Braven, starring Jason Mamoa (Aquaman/Ronin on Stargate Atlantis) and Stephen Lang (the major hard-ass in Avatar).  Plot reads like a B-roll actioner, drug dealers drop in on county folk and try to take them on their own turf. I agree, major tired plotline BUT......
Here is the kicker: The country folks (Mamoa/Lang) are in the cabin in the woods kinda thing because Lang (plays Mamoas dad) has alzheimers (he blames it on some Vietnam injury but...) and got into a fight at a local bar, thinking some girl was his dead wife out on the town. 
Of course Jason beats everyones ass in proper manner as it should be but thats why these two are in the c…