Skip to main content

LBD Stories



This page will collect stories and thoughts from Lewy Body Dementia patients. Anyone who posts here knows its for everyone to ready, so maybe someone will learn. This will also hopefully give the reader a taste of what it is like to have this disease. And as one of the key features or defects of this disease, this will discuss dementia in general. Since what we experience in that regard is the same as it is for others such as Alzheimers patients, their stories are welcome because I think we call all learn from them.

Stories will be posted to the main thread with the rest of our drivel but the LBD and dementia related ones will link here...

Caveat: this is a work in progress, pls be patient since the dude doing it *is* a patient...

What its like to have LBD: Hiding in plain sight.

What its like to have LBD: Chapter One: Before Diagnosis.

Demented Perspectives: Reality is getting thicker....

The Worst Part of Dementia 

The Condition My Condition is in

Project: WikiJeff

My Reality is starting to feel like an Alien Planet

My Sphere of Comprehension

Understanding Conversations

Objects in Mirror are stranger then they appear

A Taste of Aphasia for Normal People..

And so the Comedian asks: How many nuts can you fit in a boat?

Riding the Mobius Strip of Reality

A Strange kind of Aphasia

Pardon me whilst I regress...

Considering the Future

Doing Something actually useful for your Caregiver

I'm Just Sayin...

The Embarrassment of LBD

Quick Exit

Making Arrangements

Is It Real?

A Small Victory

Phantom Memories

The Morning After

And now for a word from my mouthpiece...

Fade To Black

Nothing is as it appears

I laughed till I cried, and cried till I laughed

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Comments

Popular posts from this blog

Dementia Cannabis Update

Update: 22 July
Project started, grow page and journal is here:

Operation: Constant Clarity


This is one of the most difficult posts I have had to write, mostly because I "had" to. Allow me to explain and I promise by the end you will not only understand the "difficulty" and the "had to" bit but also I hope you come away with a few new assumptions or conclusions, you pick and if all that passes you by, perhaps you will find illumination as this is some serious "dementia from the inside out" kinda shit.

The 18:1 Theory
Before I tell you what happened, please recall I have expressed a theory or hypothesis on the effects of a cannabis extract/concentrate that tests out to have a CBD:THC ratio of 18-1 on the demented mind. By demented I mean any brain with not just dementia but anything that alters so-called normal operation. I don't mean anything like it fixes everything, rather there are things that are fixed by this like PTSD and ADD that you …

Be Who You Actually Are

Many moons ago I was starting my day like many of us enjoying the gifts of dementia by spending most of it screwing up each and every thing I attempted to do, large or small and usually in ways both spectacular as well as costly.  On the verge of tears I spent about an hour medicating with my very best botanicals when I had the BFO (Blinding Flash of the Obvious, engineer-speak): I am still attempting to be something that I am not only NOT but barring acts of a supreme deity, never will be again. Its just that damned simple.

* What makes a persons personality unique is the precise set of influences, patterns of thinking, lifetime experiences or memories amongst many other things. These are all stored and/or controlled by the brain.

* The root cause of dementia is damage to select portions of the brain.

* For better or worse, the simple truth is that this will result in a different person. Not better or lesser, simply different, in the same way that any two coworkers might be very dif…

Holy Crap Batman! A hero with dementia!

Braven 2018
Hey kids, I ran across something you just HAVE to watch. I mean you as in readers of these words. Looking for entertainment last night I was scrounging some of the dodgier parts of the Internet for something not involving a cape or "found footage" to watch. Long story short I ran across something from this year (2018) called Braven, starring Jason Mamoa (Aquaman/Ronin on Stargate Atlantis) and Stephen Lang (the major hard-ass in Avatar).  Plot reads like a B-roll actioner, drug dealers drop in on county folk and try to take them on their own turf. I agree, major tired plotline BUT......
Here is the kicker: The country folks (Mamoa/Lang) are in the cabin in the woods kinda thing because Lang (plays Mamoas dad) has alzheimers (he blames it on some Vietnam injury but...) and got into a fight at a local bar, thinking some girl was his dead wife out on the town. 
Of course Jason beats everyones ass in proper manner as it should be but thats why these two are in the c…